Phoebe came through the transfusion wonderfully. Although it was one of the most peaceful procedures thus far I found it to be the most sobering and emotional. Watching someone else's blood enter her body, knowing that it would give her life was incredible. It was impossible not to think about all the songs about Christ's blood . The blood of Christ is more precious to me now than ever.
David asked the nurse if he could pray before the tranfusion began. And then we played a few songs on the computer like "You will be saved." And then I nursed her for a long time while 'happy tears' rolled down my face. The nurse thanked us for letting her be part of the prayer. From start to finish it took 2 1/2 hours.
Technical details:
Hemaglobin was up today from a 6 to 8.4
They are still resting her gut(very slow tube feeds, only breastmilk after pumping,no solids)
She receives all of her nutrition through her Broviac line which goes straight into her veins.
They draw blood every morning from her broviac line, so she sleeps right through it.
She has been diagnosed with "protein losing enteropathy." That's why she is on gut-rest so that whatever caused the irritation will heal.
Albumin is at 2.5
White blood cell count is high(they are closely monitering that)
Our little Chicken-Lover!
Psalm 27:14 One of Daddy's favorite verses.
Wait for the LORD; Be strong and let your heart take courage; Yes, wait for the LORD.
LORD an Abundant Helper
Praise the LORD!
Praise the LORD, O my soul!
I will praise the LORD while I live;
I will sing praises to my God while I have my being.
Do not trust in princes,
In mortal man, in whom there is no salvation.
His spirit departs, he returns to the earth;
In that very day his thoughts perish.
How blessed is he whose help is the God of Jacob,
Whose hope is in the LORD his God,
Who made heaven and earth,
The sea and all that is in them;
Who keeps faith forever;
Who executes justice for the oppressed;
Who gives food to the hungry.
The LORD sets the prisoners free.
The LORD opens the eyes of the blind;
The LORD raises up those who are bowed down;
The LORD loves the righteous;
The LORD protects the strangers;
He supports the fatherless and the widow,
But He thwarts the way of the wicked.
The LORD will reign forever,
Your God, O Zion, to all generations.
Praise the LORD!
LORD an Abundant Helper
Praise the LORD!
Praise the LORD, O my soul!
I will praise the LORD while I live;
I will sing praises to my God while I have my being.
Do not trust in princes,
In mortal man, in whom there is no salvation.
His spirit departs, he returns to the earth;
In that very day his thoughts perish.
How blessed is he whose help is the God of Jacob,
Whose hope is in the LORD his God,
Who made heaven and earth,
The sea and all that is in them;
Who keeps faith forever;
Who executes justice for the oppressed;
Who gives food to the hungry.
The LORD sets the prisoners free.
The LORD opens the eyes of the blind;
The LORD raises up those who are bowed down;
The LORD loves the righteous;
The LORD protects the strangers;
He supports the fatherless and the widow,
But He thwarts the way of the wicked.
The LORD will reign forever,
Your God, O Zion, to all generations.
Praise the LORD!
Thanks for the updates. Your dad called this afternoon before the diagnosis. It was sobering. However, Praise the Lord that they now have a diagnosis and can deal with it! We love you all and are praying often.
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